Families Fear Losing Access to Life-Changing Cystic Fibrosis Drug as NHS Funding Decision Looms
LEEDS, UK – The parents of a baby girl with cystic fibrosis are facing a difficult situation as the National Institute for Health and Care Excellence (NICE) has published draft guidance deeming the life-changing drug Kaftrio too expensive to be offered on the National Health Service (NHS). Rula Samara-Sellers and husband Connor expressed deep concern about potentially losing access to the drug that could significantly improve the life of their daughter, Layla. Layla, who is …